My Daughter died on 27th October 2008 from SUDEP.
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People Stories
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To find a story or topic of interest, enter a username or keyword in the box below.
Share your story with friends, family and our community. Talk about your interests and experiences while sharing your photos and podcasts. Spread the word about your pages so other users can post guestbook entries, read your blog, and learn more about you! Customize your space however you wish! Begin creating your own Story by clicking the orange button below. Not ready yet? Use the links below to browse through others' Stories and learn more about your fellow epilepsy.com members! (Please note that any People Stories created on epilepsy.com prior to November 2007 can be found in the People Stories Archive.) Learn more in our People Stories Help Section.
People Stories Index
 lynnTa... | ||||
Cara D... New - My Story
MY name is cara my seizures started at age 8 after a bike accident .I had a concussion and head lacerations but,there is nothing saying the bike accident caused it. I am thirty years old and have had many tests and just had electrodes on the brain at UCSF.I...
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JessieD | ||||
Michae... New - it all started with a MOTORCYCLE accident
I have been to EXTREMES to stop GRAN MAL seizures,that would include "BRAIN SURGERY" at the MAYO in Rochester MINN.switched amounts & types of meds NO HELP!!!
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mackie New - Dealing with my sons epilepsy
My son had a seizure four years ago.... but we saw problems with him as a baby. Troube learning, speaking, and moodiness.
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chadew... | ||||
 shelia... New - my epilepsy seizures
It started in 1979 and was controlled for 15 years and now not controlled.
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jay85 New - how it all started
association is i guess the best word to describe what i have right now- not quite sure if this is a disease or just part of me being perceptive. it always feels like everything's been part of my past. i seem to have lost some of my memories, but whenever i...
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chersaman | ||||
kfeld01 New - Managing "The Ballet"
I have a very good friend, who has suffered from a major illness which forced him to look at what was really important in his life. Many of us with epilepsy find outselves facing career changes or questions that we may not really be prepared to answer. ...
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sandy ... New - Seizures after aneurysm clipping
My grandmother underwent endovascular clipping of aneurysm after a mild subarachnoideal hemorraghe brought our attention to her brain vascular system. Thought the surgery went "OK"and her severe headaches dissapeared, epilepsy and its treatment...
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charger | ||||
lovejeet New - EEG Report, Help or guide me. What is the meaning of that report.
EEG report
Sleep record shows dominant alpha rhythm of 8-9CPS of
30-100uV amplitude with normal waxing & waning.
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 caregi... New - A WORLD WITH EPILEPSY AND WORRY
HUsband has epilepsy. Started 2/14/2004. All from a head trauma 16 years before that.
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scared... | ||||
Isaac ... New - ij
I was diagnose of epilepsyafter a motor accident in which I had head injuries in 1990. Its been 18 years and I still havr the disorder. What is interesting is that I rarely have seizures and the only I have may be in bed when I am asleep.I just got married...
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JessLa... New - Why today
Im 17 in a half years old. Have had epilepsy since I was thirteen. Iv'e been on Depkote for 3.5 years,then I switched to topmax which I was on for 2 years. Now I'm on Lamictal. I take 250 twice a day. I have all three types of epilepsy. I also have other medical...
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spike65 New - The comic book geek's seizure story
I have had seizures my whole life and here are my triumphs.
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Ginette | ||||
Allyson L | ||||
cassiedee New - why now
im 41 years old just found out i have a 4 cm brain tumor causing seizures and now no support from my family
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Troy G... New - First Grand at 31
Had my first seizure at 31 when we were 1 week untill our first born was due. They gave me nothing and I had another exactly 7 days later... (both in my sleep) I hate it when you wake up happy with paramedic's looking at you and asking you if you know your...
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momofe... | ||||
heidiL6 New - I dont know what to do any help would be great/complez partial seizures/???
Hi,
I have been feeling very sick for 4years now almost 5 its kind of getting to be rediculous, i havent even been able to have a regular job the past couple months cause all i want to do is sleep because i always feel so out of it like im in another...
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heathe... New - Have what they have been calling anxiety for the past 12 years been seizures??
Anxiety or seizures?
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janie123 | ||||
elizar... New - The Accident
In 2002 my grandmother and I were in a car accident, and I had my first seizure in the ambulance on the way to the hospital.
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geatzmw New - Epilepsy Seizure Alarm
http://www.giantbiosensor.com/MP5.html
Simple to use Bed Motion Monitor - detects seizures and transmits an alarm signal to a pager.
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nonieb... | ||||
sylvia... New - My Milly Mops
my daughter who is now two and a half was dignoised at seven months old with west syndrome although it started at six months old she has signifacant development delay we seem to solve one problem and then two more will pop up.Every month she seems to be given...
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 klat0057 New - My sister
My younger sister has had epilepsy ever since she was born. She is now 17 and a senior and high school and because of epilepsy she has faced many challenges.
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fiesta New - Ways to get over prejudice
Up until I was a teenager, I only had abscence seizures. Then my seizures changed.
I was a Junior in High School, Merced High School. I went to class and was called on to stand up an answer a question. I remembering standing up and then I coulc not...
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Jackel... New - One more struggling
27 yrs old
Married and a mom
Full time medical assistant and part time student.
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 Caroli... | ||||
 sanicay New - My story
I developed epilepsy due to Aortic valve replacement at the age of 27. I am now 38 and still kickin! However i will have epilepsy forever. It is alot better controlled now then it used to be.
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binkey16 New - Lindas episode
Linda M.Shea formerly of Buffalo NY, now resides in Waynesville MO, with my husband Richard, and 11 year old daughter Megan Rose.
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Ginger... New - Newest phone call from the doctor
Receiving the call on the way to work that my medication isn't cutting it anymore. Now what do I do?
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peters... | ||||
lespic... New - Temporal Seizure Disorder
I am 44 years old so I not new to my challenges with epilepsy but I have a question about how I feel when I'm about to have a temporal seizure.
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rikk New - shake and shout from the inside out
started age 3-12. stopped 13-30. return 30-40 with multiple med control. 41 control gone. worst 300 in one month, best 12. multi-type. simple, complex, generalized. not surgical canidate. vns implant on 11-12-08. activation 11-21-08. left side weakness,...
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 dmacas... | ||||
codysmom New - cody
My 10 year old son has recently been diagnosed with Landau Kleffner Syndrome. We have only been diagnosed since October. We are steadily having to go for EEG's and MRI's. Everytime we got for an EEG they change his medicine. We have been on Kepra XR,...
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cortex | ||||
 woodykatz New - Was Not Aware I was having a Seizure
I have been diagosed having several conditions, this was a shocker!!!
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jennif... New - epilepsy and surgery
My daughter, suffering for intractable epilepsy, is 13 years old and in September 2008 underwent frontal lobectomy
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blinkf... New - My Life
Hello my name is cody flynn im a 19year old male i live in orlando fl i was born with Epilepsy because of my parants with drug problems.
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Sandee New - Unsure
deja vu, strong chemical taste and smell, tend to gag through episodes, light headed, memory is not a problem, NO hallucinations, only last a minute or so
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dconrad New - The story of my thirteen year old daughter.
My daughter is thirteen now. More than a year and a half ago, she was struck by an automobile while riding her bicycle. At the time she suffered a head trauma, not losing consciousness and no signs of injury to her head when a CAT Scan was performed. ...
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Mazeral New - My Son
my son as seizures with fevers when he was a baby and they stop at 7 years old, but came back at 21 years old.
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 BiyasMom |
