Place Your Advertisement Here
 

  • Epilepsy First Aid
  • Seizure Medication
  • Animation of a Seizure
  • Seizure Diary
  • Find a Doctor
  • Epilepsy Centers
  • Clinical Trials
  • Event Calendar

Place Your Advertisement Here

Resource Specialist

Need help in answering your questions about epilepsy? Read responses to the most frequent questions posed by our community or see answers to topics that interest you. Not seeing an answer to your question? Join this moderated forum where you can ask our epilepsy resource specialist questions dealing with epilepsy. We select questions of greatest interest and educational value to all our readers. We encourage you to contact your own health care provider for individual medical advice. We cannot provide second opinions or make specific recommendations regarding therapy.

Register to Participate

 
greece
greece
New - Looking for ketogenik diet klinics with experience in Europe
Created by greeceat9/4/08 - 10:30 am
Answered by epi_helpat9/5/08 - 3:27 pm
After 5.5 years  with anti-epileptic drugs for our 16 yrs old boy, we decided to try the ketogenic diet. Are there any klinics or physicians with quite good experience in Europe?
happygirl
happygirl
New - Losing things - epilepsy or dementia
Created by happygirlat9/4/08 - 1:37 pm
Answered by epi_helpat9/5/08 - 3:19 pm
 really need some help, I don't know what to do but I find it so hard to function right now after what happened as it was so weird.  I don't know if it is epilepsy, or I am just going senile or what. I was diagnosed with epilepsy 2 years ago at the age...
Mariar...
Mariar...
New - Need some help - epilepsy family member
Created by Mariar...at8/20/08 - 10:23 am
Answered by epi_helpat8/26/08 - 5:46 am
My brother was diagnosed with epilepsy a few weeks ago, he’s 21 years old. He was taken to the hospital because of dehydration caused by having Dengue for 6 days, at the hospital he was treated for Dengue only, but then he started shaking involuntarily...
justjen38
justjen38
New - brain surgery
Created by justjen38at8/20/08 - 1:29 pm
Answered by epi_helpat8/26/08 - 5:32 am
Today, after 18 years of just managing my tonic clonics with the help of my GP and websites and some neuros, I visited a neuro and he brought up brain surgery down the road.  What exactly does this involve?  What are the side effects?  I can see the benefits...meds...
Lkaplan
Lkaplan
New - Lkaplan
Created by Lkaplanat8/23/08 - 6:09 am
Answered by epi_helpat8/26/08 - 5:22 am
I need to know how many suffer from eye problems on topamax? My son in his twenties all ready has catercact so more eyes problems ? blindness is a big fear
Rathodrr
Rathodrr
New - How do we confirm the seizure is apileptic.
Created by Rathodrrat8/25/08 - 9:54 am
Answered by epi_helpat8/26/08 - 5:15 am
My Son is 5 year old healthy 17 kg(slightly underweight) and hyper active kid. The delivery was normal and no such high fever or accident till date. 15 days ago he experienced seizure while at school for the first time. In the last 2 weeks, he has 9 seizures....
galmoy
galmoy
New - Need Information Please
Created by galmoyat8/25/08 - 1:16 pm
Answered by epi_helpat8/26/08 - 5:00 am
 We have a gorgeous 6 yr old daugher with myoclonic epilepsy as a result of double cortex syndrome - we are looking for more information on his syndrome - cant get any info here in Ireland.. Information is power......!
Gev
Gev
Ny boy is havin seizures, help please
Created by Gevat8/1/08 - 4:31 am
Answered by epi_helpat8/6/08 - 3:46 pm
My boy is 10.5 now.  He had his first seizure  2.5 years ago (march 28 2006).The second July 8 2008 and third 18 days after the second July 26 2008. We started taking convulex, prescribed by epilepсы specialist, only after third one. Based on...
longni...
longni...
How often is 'frequent' and how long is "prolonged' for seizures?
Created by longni...at7/13/08 - 9:27 pm
Answered by epi_helpat7/22/08 - 8:11 pm
My 7yo has been dx with BRE (Benign Rolandic Epilepsy), although he has additional symptoms at times. His main intense seizure period involving speech arrest,, throaty sounds, shaking of face and arm lasts about 1-2mins, but sometimes speech arrest...
juliewavw
juliewavw
I am at 19, 20, and lately 29 in my dilantin levels
Created by juliewavwat7/15/08 - 8:59 am
Answered by epi_helpat7/22/08 - 7:26 pm
My dilantin levels seem to be going up. I am on comadin since Feb. My levels have been since early July a 19, 20, and now 29. Are these wide fluctuations normal.  I would like to try to go back way down to 15 or less.  I have problems with feeling unsteady,...
sunset
sunset
85 lbs and dropping w/ seizures on the rise and help!
Created by sunsetat7/21/08 - 2:06 am
Answered by epi_helpat7/22/08 - 7:14 pm
Lynne ...
Lynne ...
Seeking Insurance Covering Epilepsy
Created by Lynne ...at7/17/08 - 3:32 pm
Answered by epi_helpat7/20/08 - 6:16 am
I am working now for the first time since being disabled from surgery for epileptic seizures. My life is so much better. I work fulltime now but I need insurance that will cover epilepsy. My employer will help me financially with the insurance if I can find...
my2blu...
my2blu...
Tegretol Side Effects
Created by my2blu...at7/18/08 - 7:25 am
Answered by epi_helpat7/20/08 - 6:07 am
I have been on Tegretol 400 mg a day for 3 years and never experienced any side effects.  Now because of the partial seizure symptoms re-appearing, my doc has increased to 600 mg a day (200 mg 3x day).  All of a sudden i have dizzy spells, lethargy, blurred...
Alissa...
Alissa...
How do I know if my child's behavior is "normal" for his age?
Created by Alissa...at6/13/08 - 8:46 am
Answered by epi_helpat6/27/08 - 7:48 pm
I have a 4-year old son who was diagnosed with complex partial seizures when he was 2 years old.  For the past 8 months, his seizures seem to have been controlled by Trileptal, but now he is having brief seconds where he "feels yucky" in his head. ...
kslone
kslone
PLEASE HELP! Daughter's Abdominal pain caused by Zarontin?
Created by ksloneat6/27/08 - 8:31 am
Answered by epi_helpat6/27/08 - 7:03 pm
My Daughter started Zarontin (the generic form, anyway) back in February this year. Please help! My daughter has been having abdominal pain and soft stools and will hardly eat anything. (for two weeks) and the last few days her abdominal pain is almost...
MSCORR...
MSCORR...
SO, NOW THAT I AM "SEIZURE-FREE" ON DILANTIN...
Created by MSCORR...at6/15/08 - 7:49 pm
Answered by epi_helpat6/24/08 - 11:05 am
HOW DO I GET INTO A CLINICAL RESEARCH TRIAL (KEEPING IN MIND THAT DUE TO THIS ILLNESS AND MIS-DIAGNOSIS AS A CHILD, I AM NOW BROKE, HOMELESS, AND ON SOCIAL SECURITY DISABILITY INCOME DUE TO "PSYCHIATRIC" REASONS?
The_Dr...
The_Dr...
what is going to happen?
Created by The_Dr...at6/22/08 - 1:56 pm
Answered by epi_helpat6/24/08 - 10:43 am
on july 9 I'm going to get a VNS implant put in. I was wondering if anyone could tell Me what I should Be expecting to happen and what to look out for after I get the implant in. cause the nuerosurgen told Me that they are going to turn the implant...
csdon
csdon
Urgent Advice
Created by csdonat6/17/08 - 5:36 am
Answered by epi_helpat6/18/08 - 7:50 pm
To the doctor concerned: My name is Claudia, I live in South Africa, and was diagnosed with frontal lobe epilepsy after a viral encephalitis in 2007. I was subsequently put onto Lamictin 125mg x2 daily. We were on holiday recently and I happened to...
wntr89
wntr89
My doctor is adding Keppra for seizures in addition to depakote?
Created by wntr89at5/21/08 - 8:04 am
Answered by epi_helpat6/2/08 - 6:59 am
denie
denie
Thickened Cortex
Created by denieat5/21/08 - 12:31 pm
Answered by epi_helpat6/2/08 - 6:47 am
I'm new to this website and have no idea what I'm doing so any insight on how to find more info on my case would be great.  Thickened Cortex on MRI?  I've had E (complex partial) for 10 yrs, starting when I was 24.  My neuro at the time sent me for an EEG,...
Birdie
Birdie
Birdie
Created by Birdieat5/21/08 - 3:55 pm
Answered by epi_helpat6/2/08 - 6:24 am
Do you have a video or pamplet that shows what Video Telemetry is?  I've been Epileptic for 48 yrs., and have never heard of it.                              thebirdie@centurytel.net
kroiz
kroiz
infant seizures
Created by kroizat5/26/08 - 11:11 am
Answered by epi_helpat6/2/08 - 6:08 am
My 4 month old has been having seizures since birth.  They are usually tonic-clonic, lasting 2-4 minutes in a series of 2 or 3.  Sometimes she has absence seizures, also in a series of 2 or 3.  she has 3-4 of these episodes a month. This is something new....
Lee050...
Lee050...
LOC & laughing
Created by Lee050...at5/22/08 - 1:04 am
Answered by epi_helpat6/2/08 - 5:57 am
Recently, when I laush A LOT, I lose consciousness, somewhat.  I wonder if this might be a type of seizure - something I have not had in 20 years (whe nI was 3 years post TBI).  Lee
forev25
forev25
Side effects from lamictal
Created by forev25at5/26/08 - 8:13 pm
Answered by epi_helpat5/30/08 - 7:15 pm
amy bo...
amy bo...
Surgery w/ hemophilia
Created by amy bo...at5/18/08 - 7:35 pm
Answered by epi_helpat5/19/08 - 5:16 am
Hello! My 6 yr old son has severe Hemophilia & Epilepsy. The docs are now discussing surgery as one of the options,any info on these two? Thank you, Amy

Questions
General Health and Women's Issues
Effects of seizures or treatment on general health, bone health, sexuality, pregnancy and menopause.
15
Finding Help
How to find or access help in the community, talking to health care providers and navigating systems.
21
Insurance Issues
Concerns and questions about insurance and medication coverage
3
Lifestyle and Stress Management
Managing lifestyle and stress to help seizure control and general well-being.
2
Managing Social Issues
Impact on family, relationships, work, leisure and independent living.
7
Medication Management
Information about medications, practical tips, memory aides and problems taking meds.
35
Open Forum
Your concerns, ideas, or questions!
6
Parents and Epilepsy
Parenting children with seizures or management issues for parents who have epilepsy.
15
Products and Resources for Epilepsy
Products, equipment, and resources for people with epilepsy, their loved ones and caregivers.
3
Safety Management
Safety concerns, seizure first aid, and ways to prevent or lessen risks.
2
Sorting Out Seizures
Questions about diagnostic testing or concerns.
45
Surgery, Devices and Other Treatments
Questions about surgery, devices, diet or other non-medical treatments.
11
Thinking, Learning, Mood, Behavior
Questions about effect of seizures and treatment on learning, mood and behavior.
7