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Groups
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To find a group or topic of interest, enter a username or keyword in the box below.
To find a group or topic of interest, enter a username or keyword in the box below.
Get and stay connected with other epilepsy.com community members who share your interests, concerns and passions. Create a virtual meeting place and deepen your connections using the Community Event Calendars, Group Discussions and Shared Member Blogs. Below, you can see the most recent Groups, and the latest activity within the Group Discussions. Browse around and if you don't see a Group you are looking for, log-in and click "Start a New Group." Your Group can be open to the public or private (by invitation only). There is no limit to the size of your Groups or what topics your Groups are based on! If you are not logged in, register now! Learn more about joining and participating in Groups in our Groups Help Section.
Group Index
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| 14 | 39 | ||
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 | 4 | 3 | ||
 Epilepsy Innovation Summit May 2008
Notes and Discussions Inspired by the May 7, 2008 Epilepsy Innovation Summit in Boston sponsored by CIMIT and NIO
| 1 | 4 | ||
 Northern Virgina Support Group
Looking for people in Northern Virginia (Parents/siblings/Patients) looking for Support Groups
| 1 | 5 | ||
Epi-teens
A Group for teens living with Epilepsy to share their experiences with others, and share advice with others
 | 1 | 12 | ||
 | 1 | 4 | ||
 living with epilepsy and ASD....autistic spectrum disorder
this is a happy friendly group to talk about living with A.D.H.D/ADD, Rett syndrome OR Aspergers syndrome this is for anyone who you know has got any of these conditions
| 3 | 9 | ||
 | 1 | 11 | ||
 Mormons Living With Epilepsy
This is where members of the Mormon faith can talk about how their faith in God and living in the Church has helped them deal with their epilepsy.
| 0 | 6 | ||
 | 15 | 61 | ||
Women and epilepsy
Women can deal with epilepsy in a different aspect than men. When it comes to the start of puberty to when menopase occurs. There are a numerous amount of effects that women can have due to hormones and becaus of childbearing. Due to this I wanted to start...
| 7 | 56 | ||
| 1 | 6 | ||
 Wearable Seizure Detection
Our group will explore technologies and developments to enable a practical seizure detector that can be used in everday life
| 6 | 15 | ||
Anti-epilepsy treatments: What's new?
Pipeline Group discussion on new developments in epilepsy treatments (including drugs, devices, gene therapies, etc.), and their potential to reach patients soon.
| 4 | 18 | ||
| 2 | 6 | ||
| 8 | 19 | ||
 | 20 | 28 | ||
| 3 | 29 | ||
| 4 | 20 | ||
 Experiences with Simple Partial Seizures
This group is for people to share their experiences with simple partial seizures with others.
| 3 | 33 | ||
| 0 | 6 | ||
 | 12 | 18 | ||
| 0 | 12 | ||
 Epilepsy due to Viral Encephalitis (an Acquired Brain Injury~ABI~)
Epilepsy due to Viral Encephalitis
| 2 | 9 | ||
Spousal support group
to learn more about how others support spouses w seizure disorders , common experiences, offer help + hope
| 8 | 20 | ||
 | 0 | 9 | ||
| 1 | 5 | ||
 | 40 | 89 | ||
| 1 | 41 | ||
| 3 | 8 | ||
| 1 | 10 | ||
| 8 | 10 | ||
 Antiepileptic Drug Screening
Discussion of preclinical models for screening potential antiepilepsy therapies
| 1 | 11 | ||
 | 10 | 31 | ||
Dating and Epilepsy
Men and Women ages 25 to 40 who live with epilepsy every day of their lives and are strong enough to survive
| 2 | 34 | ||
| 1 | 10 |
Group Activity
 denisse New - pms
Hi Everyone new to the group but i have some question because i seen i get my seizure a little bit more often when i have my periods i have had my seizure for 10 yrs now so i seen more often so just want 2 hear what kind of way do you feel. thanks
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denisse New - pms
Hi Everyone new to the group but i have some question because i seen i get my seizure a little bit more often when i have my periods i have had my seizure for 10 yrs now so i seen more often so just want 2 hear what kind of way do you feel. thanks
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 JayBri... New - Introduce Yourself
I just thought we might want to inroduce ourselves, so if you feel like it, here's the place to do it! I'll start.
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 caregi... New - Im a Wife to a Husband with Seizures...looking for others who struggle daily
Hello everyone
Im a wife to a husband who started with E. 4 years ago this past February 14th....6 months after we were married.
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 zachsm... New - My Son Zachary
My son is almost 3 years old now. He started having seizures at the young age of 4 months and was diagnosed shortly afterwards. He has been on medication since he was 5 months old and the seizures still havent stopped. When His seizures first started the Doctors...
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 kacierees New - Am I alone?
Well where do I start... my fiance has epilepsy and it is all so new and scary to me.
We met a little over three years ago, in college. Everything was moving along perfectly. I graduated and began teaching and coaching while he finished up his...
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 dmirbe |
kgrant New - Pregnancy and getting pregnant
Hi All
I am a 33 years old and have been Epileptic since i was 14. It took a long time to get my seizures under control and only when i went onto Lamictal did i manage to control both the absences and tonic-clonic seizures i have. Two years ago my husband...
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 cittauk New - Jan needs help urgently
I have had a very worrying email from Jan, a special lady who is a member of this site. Her user name is ROCKNROLL. I am extremely worried, she lives alone and it is very clear in her email that she is in a desperate situation in need of medical attention....
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codysmom |
sdavis864 New - TLE and Insect Bites
Hi All,
Just wondering if anyone has ever had seizures come on because of insect bites etc.
Have suffered T.L.E. for 20 odd years. Tried various meds but in the end could control without.
Due to stress, drinking, tiredness etc i stilll get...
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sdavis864 New - TLE and Insect Bites
Hi All,
Just wondering if anyone has ever had seizures come on because of insect bites etc.
Have suffered T.L.E. for 20 odd years. Tried various meds but in the end could control without.
Due to stress, drinking, tiredness etc i stilll get...
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sdavis864 New - TLE and Insect Bites
Hi All,
Just wondering if anyone has ever had seizures come on because of insect bites etc.
Have suffered T.L.E. for 20 odd years. Tried various meds but in the end could control without.
Due to stress, drinking, tiredness etc i stilll get...
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 btoogood New - seizure free
hey there guys from a rough patch i have had a heap of seizures, but up untill november 26th last year till present i have been seizure free, the only problem is that i have heapes of side afects espically to my lamictal.
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sorfor... New - i desprately need HELP!!!!
hi everybody,i`ve been struggling with epilepsy for 24 yrs now(i`m 31)...u can`t imagine how many doctors i`ve seen & how many prescription i`ve tried but nothing is working!!!!i had epilepsy since i was 7 but i was 1st diagnosed with petitmal at the...
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josiesmum New - New Here- 2.5 year old, Helmet? What do I tell her?
Hi there. I have a 2.5 year old little girl who is still in the process of getting a defined diagnosis, current thought is that it is MAE.
Anyhow, she is having drop seizures and they are progressing to the point where I think she may need a...
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Meow |
angie0... New - So frustrated and confused
Hello Everyone!
I am new to this group and hope that someone out there can give me a little input. I know that this post is a little long, I gave a lot of details so that it may help you understand.
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LDIEGU... |
bookbabe New - does anyone experience irritability as a symptom of temporal lobe epilepsy?
Up until my TLE diagnosis, my periodic symptom of irritablility (not being cranky, more like stimuli or small annoyances make me feel like screaming) were considered to be symptoms of my bipolar II disorder. My neurologist indicated that they could be TLE...
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Chriss... |
keekeeD New - Rett & Atypica Retts
I am new to this site, and was very glad to see a thread for Retts!
I would love to talk with other families who have a child with Retts, particularly girls & boys that were tested for MecP2 gene that came back as normal.
My daughter was...
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echo New - Benign Rolandic Epilepsy --Is it really benign? -devleopmental problems?
Hi LaraHj,
I'm having some trouble figuring out how to navigate this site... I hope this reads as a response to your post, as that is what I intend it to be!
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 brodie so as a team--What would we do this november?
alot just had to change their nicks.or am i dreamin?
i would say all the old timers get together for a private chat and try to get something going as we grow bigger everyday while were getting...
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brodie so as a team--What would we do this november?
alot just had to change their nicks.or am i dreamin?
i would say all the old timers get together for a private chat and try to get something going as we grow bigger everyday while were getting...
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brodie so as a team--What would we do this november?
alot just had to change their nicks.or am i dreamin?
i would say all the old timers get together for a private chat and try to get something going as we grow bigger everyday while were getting...
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 LCdanc... Lamictal
I have been taking Lamictal for about 8 years now and it has been extremely successful. I am on a pretty high does 900mlg. but my seizures are well controlled and eventhough i do get scared sometimes i havent had a sezire in about 6 years. I have also talked...
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lilsmom |
 ninabva68 Kids with epilepsy
Hang in there. All the parents that have kids with epilepsy. We have to hang together. The rest of the world cannot really understand how you feel when you hold your little shaking kid.
That said we need to remember many kids out grown epilepsy....
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 spiz If You Could, Would You?
If you could switch a day with a loved one so they would have to experience what would be a bad day in your life with seizures...would you and why?
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 lovies Hello, I'm new here to the group
Hello everyone, I get very confused with new websites and new groups/forums, so if I say anything wrong or put my comments in the wrong place, please forgive!! I thought this group was fantastic! I've had Epilepsy for 35 years, and my seizures have been...
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 warren7 VNS Update at the Epilepsy Innovation Summit May 7 2008
VNS
Reese Terry, Cyberonics
Epilepsy Innovation Summit
May 7, 2008
Overview
- 70 years of research suggests VNS can interrupt seizures
- FDA approved 1997
- 50,000 implants todate’
Efficacy
- main effect seem to be a gradual increase in sz threshold...
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Hisgrace Confusion to the Spouse
One of the topics I want to start off with is the spouse, as I'm a husband who is married and known my spouse since the year 2,000, My wife has obviously known about my epilepsy, yet, i just started having seizures reciently,Now we all have stories of our...
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 austin... |
austin... |
austin... |
 gph |
bookbabe temporal lobe syndrome vs. temporal lobe epilepsy
I was just diagnosed with temporal lobe syndrome. My neurologist explained that it means that my symptoms are not severe enough to be diagnosed as temoral lobe epilepsy. However, I am already taking Tegretol for another condition (bipolar type II), so...
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spiz Chat Room Slang
There is so many slangs and acronyms used in the chat room. Let's see how many we can put here to help each other learn them. Make up some of your own too!
Please do not list any that are offensive. Thank you!
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 jenoz simple partial siezure or migraine eqivalent with vertigo
Hi everyone, I’m sorry this is such a long email, I needed to tell someone.And wondered what you thought?
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neo Petit Mal Fringe
Hello all;
Please, keep an open mind on what I am about to say. I am baffled as much as any of you may be or will be after this.
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 WMarine87 Sunrise on Plum Island, MA
Okay I will start this off ...
My name is Micaila and I am 38 and I live in MA
I took this photo at Sunrise on Plum Island, MA (Newburyport). Photography is my passion. It allows me to get lost in something and not think about what is...
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denise05 Mom with Adult LGS son
My son is 24 and just finally diagnosed with LGS. I've been suspecting it for a while, but the neurologists are a little hard-headed.
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denise05 I'm looking for other parents of adult children with LGS
My son is 24 and just finally diagnosed with LGS. I've been suspecting it for a while, but the neurologists are a little hard-headed.
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lou27 |
Dee3mom HELP NEW Depakote and tonic seizures
Hi I am new to all of this..My son who is 11 years old was just diagnosed with tonic seizures this past tuesday..He was put on 375 mg of depakote and he is also taking 50 mg of lamictial which they are weaning him from......How long does it usually take...
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 davita |
 findes... generic?
My insurance just charged me for using the name brand instead of the generic of Lamictal. I've only found the generic in small doses. I take 800mg a day....anyone else found larger doses in generic?
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 Colina Is it a bug?
I'm confused about the tag in "Old Timers" group. I didn't put it there myself and just noticed it the other day. I find it odd and it realy has nothing to do with the group. Any ideas? This is what the tag is..
Single mom with seizures...
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 st3pha... Lets get to know eachother.
Well My name is Stephanie. I live in the left lower part of Michigan. I'm going to be 14 in March. I have absent seizures most of the time. I have only had it for the past year or so but I've been struggling to control it with meds. It doesn't really affect...
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