A place to get information and share information and ideas on the new Consumer Journal.
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Consumer Journal
A place to get information and share information and ideas on the new Consumer Journal.
| 2 | 9 |
| 1595 | 7318 | |
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Living With Epilepsy - Adult Issues
A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.
| 2205 | 14721 |
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Living With Epilepsy - Youth Issues
A place to share questions, concerns and challenges in coping with children's seizures and life issues.
| 354 | 1759 |
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Diagnostic Dilemmas and Testing
A place to ask questions about EEG's and other tests and to share your experience with the diagnostic process.
| 525 | 2287 |
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Medication Issues
A place to share concerns, experiences and challenges about medications for seizure management.
| 1442 | 8219 |
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Surgery Issues
A place to share concerns, experiences and challenges about surgical treatment and use of devices for epilepsy.
| 372 | 2383 |
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Complementary Therapies
A place to share concerns, experiences and challenges about alternative or complementary therapies.
| 129 | 920 |
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Parent Group
A place for parents to learn and get support from other parents of children with epilepsy.
| 837 | 4141 |
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Families & Friends
A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.
| 629 | 3885 |
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Women With Epilepsy
A place for women - to share concerns, experiences, and support about issues unique to women with epilepsy.
| 497 | 3269 |
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Men With Epilepsy
A place for male bonding - to share concerns and experiences of being a man with seizures.
| 60 | 443 |
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Veterans with seizures
A place for veterans with seizures or family members to meet and share experiences and concerns.
| 2 | 21 |
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Teen Group
A place for teens with seizures to talk with each other, share experiences and support, or just hang out!
| 218 | 1346 |
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Advocate for Epilepsy
A place to share concerns and strategies for making your voices heard about epilepsy.
| 46 | 224 |
| 36 | 161 | |
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Products, Resources, Helpful Links
Users are invited to share products, equipment, resources and helpful links that users may find interesting for people with epilepsy, loved ones, and caregivers.
| 64 | 240 |
| 415 | 3501 | |
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Creative Corner
Share your creative talents! A place to add your poetry, songs, writings for all to see. (Authors should be attributed properly!)
| 17 | 76 |
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Epilepsy.com Help
A place to ask questions about the site or to provide feedback to site administrators.
| 213 | 1056 |
jennif... New - Keppra side effects on my 2 1/2 year old
Created by jennif...at11/28/08 - 3:04 pm|7 Views|1 Comment Posted To: New to Epilepsy.com
Hello,
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M_Johnson New - Girlfriend suffers from epilepsy
Created by M_Johnsonat9/16/08 - 8:13 am|41 Views|2 Comments Posted To: Women With Epilepsy
Hi all,
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yekim13 New - Nocturnal Seizures?
Created by yekim13at12/4/08 - 9:34 pm|1 View Posted To: Teen Group PLease help, I am 16 years old and I have been having these THINGS for about 5 years now, and the closest thing I can come up with is that it can be seizures. Well, I've finally gotten a sleep study scheduled, but they have been bothering me more and more....
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vmathe1 New - Have you taken an SSRI and then developed seizures?
Created by vmathe1at12/1/08 - 4:20 pm|14 Views|3 Comments Posted To: Medication Issues
So, two years ago this May I had a grand mal seizure. (I'm currently 20.) My medical history is sort of fuzzy as I have a history of syncope and getting in trouble for daydreaming and being easily distracted. Thus, it can't be said with absolute certainity...
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TheHam New - Undiagnosed seizures or "fake" seizures?
Created by TheHamat12/4/08 - 8:15 pm|5 Views Posted To: Diagnostic Dilemmas and Testing
Hello, and thanks for reading this! I feel silly asking for help, and am half expecting no response.
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ladybu... New - Seizures, school and peers
Created by ladybu...at11/20/08 - 5:05 pm|4 Views|1 Comment Posted To: Living With Epilepsy - Youth Issues
Hello all,
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jeanne29 New - Help! I'm so freaked out!
Created by jeanne29at11/2/08 - 9:13 am|35 Views|3 Comments Posted To: Living With Epilepsy - Youth Issues |
wren New - Epilepsy developement at age 50?
Created by wrenat11/23/08 - 4:33 am|14 Views|4 Comments Posted To: Living With Epilepsy - Adult Issues Hello, I have a question for the forum, Has anyone here ever heard of developing Epilepsy at a later stage in life? Recently I had a seizure and the doctors tested me and believe I have epilepsy. The EEG they performed on me showed spiking, and I have an appointment...
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rleslie45 New - Adult Myoclonic Seizures
Created by rleslie45at12/2/08 - 11:38 am|14 Views|1 Comment Posted To: Diagnostic Dilemmas and Testing I am a 50 year old male, who learned about 3 months ago that the dizziness and light headed feelings I started experiencing a year and half earlier were in fact Myoclonic Seizures. This diagnosis came from my sister no less, who is a neuropsychologist, who...
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Kat1224 New - Seizures while sleeping
Created by Kat1224at11/9/08 - 1:13 pm|88 Views|13 Comments Posted To: Living With Epilepsy - Adult Issues
Hi everyone! I'm new to this website, and I thought I could see if some of you could answer a few of my questions. First of all, I have been living with epilepsy for about 2 yrs now, and the only time I have ever had them is during my sleep. They have so...
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whofan New - PLEASE HELP ME!!!
Created by whofanat12/4/08 - 3:49 pm|16 Views|3 Comments Posted To: Diagnostic Dilemmas and Testing
I really need help, i dont know where to go to get it right now, im really scared..my friend Tristin just told me that he is REALLY sick..he doesnt have epilepsy but i don tknow where to go, if someone can please help me find out where to look or what to...
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PGJohnson New - New Epileptic/Epilepsy and the Military
Created by PGJohnsonat10/19/08 - 9:19 am|48 Views|4 Comments Posted To: New to Epilepsy.com Greetings!
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ETP New - Tell President-elect Obama Your Story
Created by ETPat12/4/08 - 5:29 pm|4 Views Posted To: Advocate for Epilepsy
In the Washington Post today there was an article - "Obama Team Seeking Grass-Roots Input on Policy." This is your opportunity to tell your story. You can tell the president-elect's team:
what you and your family go through
about the problems...
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ETP New - Tell President-elect Obama Your Story
Created by ETPat12/4/08 - 5:27 pm|1 View Posted To: Advocate for Epilepsy
In the Washington Post today there was an article - "Obama Team Seeking Grass-Roots Input on Policy." This is your opportunity to tell your story. You can tell the president-elect's team:
what you and your family go through
about the problems...
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kareterra New - carbamazepine withdrawal
Created by kareterraat8/1/08 - 6:32 pm|102 Views|16 Comments Posted To: Medication Issues
Yay! finished with the withdrawal and am now solely taking the keppra. All the withdrawal symptoms have gone - no more shakiness, no numbness in face, fingers and arms. I was really worried about that - I think i would rather have two or three seizures...
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kdyer New - 7 year old son with absence seizures...and now attention and lear...
Created by kdyerat12/4/08 - 10:28 am|7 Views|1 Comment Posted To: Parent Group My son was diagnosed as having absence seizures when he was 4 years old. We suspect that they began when he was 2 1/2 - 3 years old, we just didn't realize what his "eye rolling" was all about for a very long time. He was on several different...
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chelsea93 New - Pregnancy and Trileptal?
Created by chelsea93at9/25/08 - 3:27 pm|16 Views|1 Comment Posted To: Women With Epilepsy Im chelsea and im only 15 but im really worried about when i get older and want to have kids. I am on Trileptal right now and have been for a little over a year. I was wondering if anyone whose on trileptal has had a kid or if anyone knows if the medication...
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lcf New - Epilepsy & Diet
Created by lcfat12/1/08 - 12:00 pm|18 Views|2 Comments Posted To: New to Epilepsy.com |
JinLondon New - Can they legally fire me???
Created by JinLondonat10/4/08 - 2:33 am|101 Views|8 Comments Posted To: Living With Epilepsy - Adult Issues
Hi-
Started a new job this summer. I was honest with them when I started and they know my last tonic-clonic seizure had been about 6 weeks before, when they hired me. I also spoke to the Health Advisor HR lady, who only wanted to check that no part...
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rhea1965 New - Daughter diagnosed w/Juvenile Myoclonic Epilepsy
Created by rhea1965at1/28/05 - 12:40 am|2315 Views|45 Comments Posted To: Families & Friends My 14 year old daughter was recently diagnosed with JME I was wondering if there was any one out therewho is about the same age she could converse with about this and to let her know she's not alone. She recently had a tonic-clonic...
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moonst... New - Colleges that work with sz???
Created by moonst...at10/15/08 - 2:35 pm|19 Views|3 Comments Posted To: Teen Group Do any of you teens know of any colleges that are willing to work with students who have tonic-clonic sz? My 19 yo daughter would like to attend college away from home, but she's had nighttime tonic-clonics for three years. The sz are hard. She would need...
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misswood New - confused and need questions about a newbie 2 seizures
Created by misswoodat12/4/08 - 10:04 am|3 Views Posted To: Living With Epilepsy - Adult Issues
I am very new to the seizure/epilepsy thing...so please be patient.
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kmc New - night time epilepsey
Created by kmcat11/23/07 - 6:31 am|85 Views|3 Comments Posted To: Epilepsy.com Help i have a 12 yr old son that has been taking homeopathic medication for night terrors. he wakes screaming, sweating heart racing pupils fixed yet recalls nothing afterwards.
i caught him once just about to jump out of his bedroom window, the medication he...
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boosmomma New - VNS, the good, the bad, and the ugly?
Created by boosmommaat11/5/08 - 12:33 pm|39 Views|7 Comments Posted To: Parent Group |
Rachel... New - Peripheral Vision loss
Created by Rachel...at12/2/08 - 5:27 pm|25 Views|5 Comments Posted To: Living With Epilepsy - Adult Issues Today while in class I had a scary and strange experience. I sat down in the front of the class for a presentation/project and my peripheral vision went. I lost it completely. At first I thought maybe the lights were making my eyes have those spots momentarily,...
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carlsona New - 21 year old brother just had grand-mal, no insurance, Washington ...
Created by carlsonaat4/1/05 - 12:06 am|395 Views|7 Comments Posted To: Families & Friends Aloha,My name is Amber and my younger brother (he's 3 years younger, 21) just had a grand mal seizure yesterday in Washington state. He doesn't have any insurance. Luckily the hospital he went to has a fund for that sort of thing,...
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patrish New - Is this a very bad neurogist please??
Created by patrishat12/2/08 - 3:11 pm|47 Views|5 Comments Posted To: Living With Epilepsy - Adult Issues |
cmonkman New - Keppra
Created by cmonkmanat4/11/08 - 8:31 pm|263 Views|22 Comments Posted To: Medication Issues
I am a 19 year old girl. I have only been diagnosed with epilepsy for about 7 months. I have taken various medications because my body did not react well to most. I am taking Keppra and Lamictal at the moment. I have been getting quite anxious, tense, and...
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JipThe... New - How Long to Feel the Side Effects of Keppra?
Created by JipThe...at7/24/08 - 4:57 am|154 Views|21 Comments Posted To: Medication Issues I have been on Keppra 48 hours and I was wondering how long it takes to feel the side effects? I have felt the drowsiness within hours of the first dose. I know the first month is supposed to be the worst. Can anyone tell me when I will feel the side effects at their worst?
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cjad234 New - Epilepsy and marijuana
Created by cjad234at2/5/05 - 9:32 am|14368 Views|130 Comments Posted To: Complementary Therapies Hi all, I was wondering whether or not the effects of pot on the brain can intefere with the effects of the epilepsy medicine Tegretol 400mg per day. I know grapefruit and alcohol have adverse effects on the drug's treatments and can...
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marienury New - Epilepsy and Infertility
Created by marienuryat12/3/08 - 10:46 am|3 Views Posted To: Medication Issues Hi everyone, Ive been diagnosed with nocturnal seizures for almost 5 years i am now 19 years old, ive been drinking strong medications for it but stopped for a while since my doctor told me it gave infertility and could stop at the age of 18 (due to my case,...
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knaked... New - My daughter had a seizure last night
Created by knaked...at12/3/08 - 9:08 am|14 Views Posted To: New to Epilepsy.com
Hello,
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lowkey New - Please help worried about Brother
Created by lowkeyat12/3/08 - 7:37 am|10 Views Posted To: New to Epilepsy.com |
Dylan1226 New - The transition of switching from Dilantin to Lactimil.
Created by Dylan1226at11/26/08 - 4:35 pm|31 Views|6 Comments Posted To: Living With Epilepsy - Adult Issues
My doctor wants to gradually switch me from Dilantin to Lactimil. I've been doing fine on Dilantin for 15 years, but obviously there are concerns about bone damage and liver damage from Dilantin.
Has anyone done this? What was the transition...
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Macthe... New - Seizure recovery time
Created by Macthe...at8/24/08 - 3:12 am|60 Views|4 Comments Posted To: Living With Epilepsy - Adult Issues
How long do you take to recover from a seizure?
I have suffered from epilepsy (grand mal) for 40 years - about 1 seizure a year (lucky me!) But over the last 3 years my wonderful work colleagues have expressed increasing anxiety that I'm coming back...
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Daniella New - who am i?
Created by Daniellaat2/1/08 - 4:38 am|195 Views|20 Comments Posted To: Living With Epilepsy - Youth Issues
i'm 17, ive had epilepsy for almost 5 years and 3 major seizure within that time period. i experience almost on a daily basis jerks and blackout and memory loss is a big issue. this has all lead to depression and i still can't accept my issue or allow it...
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criskris New - Chlorine Exposure and Seizures
Created by criskrisat9/24/07 - 11:06 am|462 Views|11 Comments Posted To: Living With Epilepsy - Youth Issues Hi,
I'm pretty new around here, and I really appreciate all of the great information. Some of it is applicable, and all of it is informative. Thanks.
Anyway, my 5 year-old has been diagnosed with Focal Onset Seizures. She has...
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pewter New - So angry with Neurologist
Created by pewterat11/26/08 - 5:54 pm|58 Views|5 Comments Posted To: Living With Epilepsy - Adult Issues
Had a follow up appt. with Neuro yesterday. She again went on and on about how I may not be having seizures but would treat me as if I were because the only 2 EEGs performed (1 standard and 1 Sleep Deprived) were both normal. Her gripe was that because...
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kevshinn New - Sleep and Seizures
Created by kevshinnat12/2/08 - 9:57 pm|15 Views Posted To: New to Epilepsy.com I have a condition that I cannot find any information on, so I am looking here for help. I have periodic episodes of waking up approx 30 min after falling asleep with a sweating feeling, accompanied by dizziness that fades in and out, at times making me feel...
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Black.... New - Topamax Side Effects
Created by Black....at8/31/08 - 6:44 am|108 Views|8 Comments Posted To: Medication Issues i've been on Topamax for two months now 50mg a day.. first month was great(no seizures YAY) and no side effects.. this second month though i've been having really bad side pains, constipation this whole month, back pain, and abdominal pain constantly..
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ROCKNROLL New - COMPLETELY POSITIVE SPIRITUAL FORUM........PLEASE HONOR THIS FORUM!
Created by ROCKNROLLat12/2/08 - 8:47 pm|11 Views Posted To: Complementary Therapies
DO YOU HAVE EPILEPSY? I DO! AND THE ALL CAPS? PLEASE UNDERSTAND THAT I AM VISUALLY IMPAIRED AND I NEED THE UNIFORMITY OF ALL CAPS. I AM NEVER OR WOULD I EVER YELL AT ANYONE! THIS IS MY FIRST SUGGESTION AND I WILL EXPLAIN THE REST BELOW! THANKS!
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FindaWay New - Help I am so confused: Are they real seizures? Should I take the ...
Created by FindaWayat11/2/08 - 11:00 am|64 Views|4 Comments Posted To: New to Epilepsy.com
Hello, I am new here and I need some help/support.
I have had seizures (or) something that appears like them for the past few years.
They have gotten worst. And, I don't know what to do. I don't have medical insurance at the moment,...
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dainty New - Birthmarks & Epilepsy
Created by daintyat11/12/08 - 5:14 am|18 Views|2 Comments Posted To: Living With Epilepsy - Youth Issues
Anyone know of any relation between birthmarks and E?
I have 2 kids with genetic E and they both have birth marks. I was asked about them by the Dr but am wondering if there is any correlation.
Thanks
joan*
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emic New - Trileptal and weight gain
Created by emicat5/10/05 - 7:53 am|1907 Views|22 Comments Posted To: Medication Issues I know that Trileptal is not normally related to weight gain, but I swear that it has made me pack on some pounds. I'm only on 300 mg/day, and I've been on it for only about 3 months. Before this, I had no problem keeping...
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filigree New - Trying to gain weight on Topamax!
Created by filigreeat9/11/08 - 8:35 am|38 Views|3 Comments Posted To: Medication Issues
I am on Topamax (currently 100mg, 2x day) to control my complex partial seizures. I just started it a couple of weeks ago, and it seems to already be doing the trick. It caused me to have more seizure activity at night at first, as I've been tapering up,...
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angele... New - epilepsy questions
Created by angele...at12/2/08 - 11:34 am|18 Views|1 Comment Posted To: Parent Group |
dfazg New - Anyone from Des Moines, Iowa with a child who has epilepsy?
Created by dfazgat12/2/08 - 11:28 am|9 Views|1 Comment Posted To: Families & Friends
My 5 year old is having a check with Dr. Narawong for the first time this month and I would like some Dr. reviews if anyone has taken their child to her. My insurance only covers 2 pediatric neurologists and I picked her since she was at Blank. My other...
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melladee New - can't drive anylonger, I've been thinking about starting a busine...
Created by melladeeat11/25/08 - 4:26 pm|20 Views|2 Comments Posted To: Living With Epilepsy - Adult Issues
I don't know much about e-commerece or websites, I do know I must do something fast. Does anyone have any experience with online businesses? Could you help me out please? thanks , melladee
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shu New - Controlling absence seizures
Created by shuat3/8/08 - 8:07 am|267 Views|26 Comments Posted To: Parent Group Does anyone else have a child with just absence seizures and no other neurological problems. I am trying to find someone who can support/relate to what we are going thru. I know compared to others, having just absence seizures, seems less problematic, but...
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ETP New - Topics for a New Consumer Journal
Created by ETPat11/27/08 - 9:56 am|80 Views|7 Comments Posted To: Consumer Journal
If you haven’t read about it already, epilepsy.com is preparing to launch a new journal about epilepsy, written and reviewed by you, the people who live with epilepsy everyday. We are accepting submissions for articles from people with epilepsy, their...
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