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DiscussionsComments
Consumer Journal
A place to get information and share information and ideas on the new Consumer Journal.
29
New to Epilepsy.com
A place for newcomers to the site. Stop by and introduce yourself.
15957318
Living With Epilepsy - Adult Issues
A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.
220514721
Living With Epilepsy - Youth Issues
A place to share questions, concerns and challenges in coping with children's seizures and life issues.
3541759
Diagnostic Dilemmas and Testing
A place to ask questions about EEG's and other tests and to share your experience with the diagnostic process.
5252287
Medication Issues
A place to share concerns, experiences and challenges about medications for seizure management.
14428219
Surgery Issues
A place to share concerns, experiences and challenges about surgical treatment and use of devices for epilepsy.
3722383
Complementary Therapies
A place to share concerns, experiences and challenges about alternative or complementary therapies.
129920
Parent Group
A place for parents to learn and get support from other parents of children with epilepsy.
8374141
Families & Friends
A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.
6293885
Women With Epilepsy
A place for women - to share concerns, experiences, and support about issues unique to women with epilepsy.
4973269
Men With Epilepsy
A place for male bonding - to share concerns and experiences of being a man with seizures.
60443
Veterans with seizures
A place for veterans with seizures or family members to meet and share experiences and concerns.
221
Teen Group
A place for teens with seizures to talk with each other, share experiences and support, or just hang out!
2181346
Advocate for Epilepsy
A place to share concerns and strategies for making your voices heard about epilepsy.
46224
Insurance Issues
Concerns and strategies for accessing insurance and Medicare Part D
36161
Products, Resources, Helpful Links
Users are invited to share products, equipment, resources and helpful links that users may find interesting for people with epilepsy, loved ones, and caregivers.
64240
Corner Booth
A place to stop by, socialize and check in with each other. Kick back!
4153501
Creative Corner
Share your creative talents! A place to add your poetry, songs, writings for all to see. (Authors should be attributed properly!)
1776
Epilepsy.com Help
A place to ask questions about the site or to provide feedback to site administrators.
2131056

Forum Activity

 
jennif...
jennif...
New - Keppra side effects on my 2 1/2 year old
Created by jennif...at11/28/08 - 3:04 pm|7 Views|1 Comment
Posted To: New to Epilepsy.com
Hello,
M_Johnson
M_Johnson
New - Girlfriend suffers from epilepsy
Created by M_Johnsonat9/16/08 - 8:13 am|41 Views|2 Comments
Posted To: Women With Epilepsy
Hi all,
yekim13
yekim13
New - Nocturnal Seizures?
Created by yekim13at12/4/08 - 9:34 pm|1 View
Posted To: Teen Group
PLease help, I am 16 years old and I have been having these THINGS for about 5 years now, and the closest thing I can come up with is that it can be seizures. Well, I've finally gotten a sleep study scheduled, but they have been bothering me more and more....
vmathe1
vmathe1
New - Have you taken an SSRI and then developed seizures?
Created by vmathe1at12/1/08 - 4:20 pm|14 Views|3 Comments
Posted To: Medication Issues
So, two years ago this May I had a grand mal seizure. (I'm currently 20.) My medical history is sort of fuzzy as I have a history of syncope and getting in trouble for daydreaming and being easily distracted. Thus, it can't be said with absolute certainity...
TheHam
TheHam
New - Undiagnosed seizures or "fake" seizures?
Created by TheHamat12/4/08 - 8:15 pm|5 Views
Posted To: Diagnostic Dilemmas and Testing
Hello, and thanks for reading this! I feel silly asking for help, and am half expecting no response.
ladybu...
ladybu...
New - Seizures, school and peers
Created by ladybu...at11/20/08 - 5:05 pm|4 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
Hello all,
jeanne29
jeanne29
New - Help! I'm so freaked out!
Created by jeanne29at11/2/08 - 9:13 am|35 Views|3 Comments
Posted To: Living With Epilepsy - Youth Issues
wren
wren
New - Epilepsy developement at age 50?
Created by wrenat11/23/08 - 4:33 am|14 Views|4 Comments
Posted To: Living With Epilepsy - Adult Issues
Hello, I have a question for the forum, Has anyone here ever heard of developing Epilepsy at a later stage in life? Recently I had a seizure and the doctors tested me and believe I have epilepsy. The EEG they performed on me showed spiking, and I have an appointment...
rleslie45
rleslie45
New - Adult Myoclonic Seizures
Created by rleslie45at12/2/08 - 11:38 am|14 Views|1 Comment
Posted To: Diagnostic Dilemmas and Testing
I am a 50 year old male, who learned about 3 months ago that the dizziness and light headed feelings I started experiencing a year and half earlier were in fact Myoclonic Seizures. This diagnosis came from my sister no less, who is a neuropsychologist, who...
Kat1224
Kat1224
New - Seizures while sleeping
Created by Kat1224at11/9/08 - 1:13 pm|88 Views|13 Comments
Posted To: Living With Epilepsy - Adult Issues
Hi everyone! I'm new to this website, and I thought I could see if some of you could answer a few of my questions. First of all, I have been living with epilepsy for about 2 yrs now, and the only time I have ever had them is during my sleep. They have so...
whofan
whofan
New - PLEASE HELP ME!!!
Created by whofanat12/4/08 - 3:49 pm|16 Views|3 Comments
Posted To: Diagnostic Dilemmas and Testing
I really need help, i dont know where to go to get it right now, im really scared..my friend Tristin just told me that he is REALLY sick..he doesnt have epilepsy but i don tknow where to go, if someone can please help me find out where to look or what to...
PGJohnson
PGJohnson
New - New Epileptic/Epilepsy and the Military
Created by PGJohnsonat10/19/08 - 9:19 am|48 Views|4 Comments
Posted To: New to Epilepsy.com
Greetings!
ETP
ETP
New - Tell President-elect Obama Your Story
Created by ETPat12/4/08 - 5:29 pm|4 Views
Posted To: Advocate for Epilepsy
In the Washington Post today there was an article - "Obama Team Seeking Grass-Roots Input on Policy." This is your opportunity to tell your story. You can tell the president-elect's team: what you and your family go through about the problems...
ETP
ETP
New - Tell President-elect Obama Your Story
Created by ETPat12/4/08 - 5:27 pm|1 View
Posted To: Advocate for Epilepsy
In the Washington Post today there was an article - "Obama Team Seeking Grass-Roots Input on Policy." This is your opportunity to tell your story. You can tell the president-elect's team: what you and your family go through about the problems...
kareterra
kareterra
New - carbamazepine withdrawal
Created by kareterraat8/1/08 - 6:32 pm|102 Views|16 Comments
Posted To: Medication Issues
Yay! finished with the withdrawal and am now solely taking the keppra.  All the withdrawal symptoms have gone - no more shakiness, no numbness in face, fingers and arms.  I was really worried about that - I think i would rather have two or three seizures...
kdyer
kdyer
New - 7 year old son with absence seizures...and now attention and lear...
Created by kdyerat12/4/08 - 10:28 am|7 Views|1 Comment
Posted To: Parent Group
My son was diagnosed as having absence seizures when he was 4 years old.  We suspect that they began when he was 2 1/2 - 3 years old, we just didn't realize what his "eye rolling" was all about for a very long time.  He was on several different...
chelsea93
chelsea93
New - Pregnancy and Trileptal?
Created by chelsea93at9/25/08 - 3:27 pm|16 Views|1 Comment
Posted To: Women With Epilepsy
Im chelsea and im only 15 but im really worried about when i get older and want to have kids. I am on Trileptal right now and have been for a little over a year. I was wondering if anyone whose on trileptal has had a kid or if anyone knows if the medication...
lcf
lcf
New - Epilepsy & Diet
Created by lcfat12/1/08 - 12:00 pm|18 Views|2 Comments
Posted To: New to Epilepsy.com
JinLondon
JinLondon
New - Can they legally fire me???
Created by JinLondonat10/4/08 - 2:33 am|101 Views|8 Comments
Posted To: Living With Epilepsy - Adult Issues
Hi- Started a new job this summer. I was honest with them when I started and they know my last tonic-clonic seizure had been about 6 weeks before, when they hired me. I also spoke to the Health Advisor HR lady, who only wanted to check that no part...
rhea1965
rhea1965
New - Daughter diagnosed w/Juvenile Myoclonic Epilepsy
Created by rhea1965at1/28/05 - 12:40 am|2315 Views|45 Comments
Posted To: Families & Friends
My 14 year old daughter was recently diagnosed with JME I was wondering if there was any one out therewho is about the same age she could converse with about this and to let her know she's not alone. She recently had a tonic-clonic...
moonst...
moonst...
New - Colleges that work with sz???
Created by moonst...at10/15/08 - 2:35 pm|19 Views|3 Comments
Posted To: Teen Group
Do any of you teens know of any colleges that are willing to work with students who have tonic-clonic sz? My 19 yo daughter would like to attend college away from home, but she's had nighttime tonic-clonics for three years. The sz are hard. She would need...
misswood
misswood
New - confused and need questions about a newbie 2 seizures
Created by misswoodat12/4/08 - 10:04 am|3 Views
Posted To: Living With Epilepsy - Adult Issues
I am very new to the seizure/epilepsy thing...so please be patient. 
kmc
kmc
New - night time epilepsey
Created by kmcat11/23/07 - 6:31 am|85 Views|3 Comments
Posted To: Epilepsy.com Help
i have a 12 yr old son that has been taking homeopathic medication for night terrors. he wakes screaming, sweating heart racing pupils fixed yet recalls nothing afterwards. i caught him once just about to jump out of his bedroom window, the medication he...
boosmomma
boosmomma
New - VNS, the good, the bad, and the ugly?
Created by boosmommaat11/5/08 - 12:33 pm|39 Views|7 Comments
Posted To: Parent Group
Rachel...
Rachel...
New - Peripheral Vision loss
Created by Rachel...at12/2/08 - 5:27 pm|25 Views|5 Comments
Posted To: Living With Epilepsy - Adult Issues
Today while in class I had a scary and strange experience.  I sat down in the front of the class for a presentation/project and my peripheral vision went.  I lost it completely.  At first I thought maybe the lights were making my eyes have those spots momentarily,...
carlsona
carlsona
New - 21 year old brother just had grand-mal, no insurance, Washington ...
Created by carlsonaat4/1/05 - 12:06 am|395 Views|7 Comments
Posted To: Families & Friends
Aloha,My name is Amber and my younger brother (he's 3 years younger, 21) just had a grand mal seizure yesterday in Washington state. He doesn't have any insurance. Luckily the hospital he went to has a fund for that sort of thing,...
patrish
patrish
New - Is this a very bad neurogist please??
Created by patrishat12/2/08 - 3:11 pm|47 Views|5 Comments
Posted To: Living With Epilepsy - Adult Issues
cmonkman
cmonkman
New - Keppra
Created by cmonkmanat4/11/08 - 8:31 pm|263 Views|22 Comments
Posted To: Medication Issues
I am a 19 year old girl. I have only been diagnosed with epilepsy for about 7 months. I have taken various medications because my body did not react well to most. I am taking Keppra and Lamictal at the moment. I have been getting quite anxious, tense, and...
JipThe...
JipThe...
New - How Long to Feel the Side Effects of Keppra?
Created by JipThe...at7/24/08 - 4:57 am|154 Views|21 Comments
Posted To: Medication Issues
I have been on Keppra 48 hours and I was wondering how long it takes to feel the side effects? I have felt the drowsiness within hours of the first dose. I know the first month is supposed to be the worst. Can anyone tell me when I will feel the side effects at their worst?
cjad234
cjad234
New - Epilepsy and marijuana
Created by cjad234at2/5/05 - 9:32 am|14368 Views|130 Comments
Posted To: Complementary Therapies
Hi all, I was wondering whether or not the effects of pot on the brain can intefere with the effects of the epilepsy medicine Tegretol 400mg per day. I know grapefruit and alcohol have adverse effects on the drug's treatments and can...
marienury
marienury
New - Epilepsy and Infertility
Created by marienuryat12/3/08 - 10:46 am|3 Views
Posted To: Medication Issues
Hi everyone, Ive been diagnosed with nocturnal seizures for almost 5 years i am now 19 years old, ive been drinking strong medications for it but stopped for a while since my doctor told me it gave infertility and could stop at the age of 18 (due to my case,...
knaked...
knaked...
New - My daughter had a seizure last night
Created by knaked...at12/3/08 - 9:08 am|14 Views
Posted To: New to Epilepsy.com
Hello,
lowkey
lowkey
New - Please help worried about Brother
Created by lowkeyat12/3/08 - 7:37 am|10 Views
Posted To: New to Epilepsy.com
Dylan1226
Dylan1226
New - The transition of switching from Dilantin to Lactimil.
Created by Dylan1226at11/26/08 - 4:35 pm|31 Views|6 Comments
Posted To: Living With Epilepsy - Adult Issues
My doctor wants to gradually switch me from Dilantin to Lactimil. I've been doing fine on Dilantin for 15 years, but obviously there are concerns about bone damage and liver damage from Dilantin.   Has anyone done this? What was the transition...
Macthe...
Macthe...
New - Seizure recovery time
Created by Macthe...at8/24/08 - 3:12 am|60 Views|4 Comments
Posted To: Living With Epilepsy - Adult Issues
How long do you take to recover from a seizure?  I have suffered from epilepsy (grand mal) for 40 years - about 1 seizure a year (lucky me!) But over the last 3 years my wonderful work colleagues have expressed increasing anxiety that I'm coming back...
Daniella
Daniella
New - who am i?
Created by Daniellaat2/1/08 - 4:38 am|195 Views|20 Comments
Posted To: Living With Epilepsy - Youth Issues
i'm 17, ive had epilepsy for almost 5 years and 3 major seizure within that time period. i experience almost on a daily basis jerks and blackout and memory loss is a big issue. this has all lead to depression and i still can't accept my issue or allow it...
criskris
criskris
New - Chlorine Exposure and Seizures
Created by criskrisat9/24/07 - 11:06 am|462 Views|11 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi, I'm pretty new around here, and I really appreciate all of the great information. Some of it is applicable, and all of it is informative. Thanks. Anyway, my 5 year-old has been diagnosed with Focal Onset Seizures. She has...
pewter
pewter
New - So angry with Neurologist
Created by pewterat11/26/08 - 5:54 pm|58 Views|5 Comments
Posted To: Living With Epilepsy - Adult Issues
Had a follow up appt. with Neuro yesterday.  She again went on and on about how I may not be having seizures but would treat me as if I were because the only 2 EEGs performed (1 standard and 1 Sleep Deprived) were both normal.  Her gripe was that because...
kevshinn
kevshinn
New - Sleep and Seizures
Created by kevshinnat12/2/08 - 9:57 pm|15 Views
Posted To: New to Epilepsy.com
I have a condition that I cannot find any information on, so I am looking here for help. I have periodic episodes of waking up approx 30 min after falling asleep with a sweating feeling, accompanied by dizziness that fades in and out, at times making me feel...
Black....
Black....
New - Topamax Side Effects
Created by Black....at8/31/08 - 6:44 am|108 Views|8 Comments
Posted To: Medication Issues
i've been on Topamax for two months now 50mg a day.. first month was great(no seizures YAY) and no side effects.. this second month though i've been having really bad side pains, constipation this whole month, back pain, and abdominal pain constantly..
ROCKNROLL
ROCKNROLL
New - COMPLETELY POSITIVE SPIRITUAL FORUM........PLEASE HONOR THIS FORUM!
Created by ROCKNROLLat12/2/08 - 8:47 pm|11 Views
Posted To: Complementary Therapies
DO YOU HAVE EPILEPSY? I DO! AND THE ALL CAPS? PLEASE UNDERSTAND THAT I AM VISUALLY IMPAIRED AND I NEED THE UNIFORMITY OF ALL CAPS. I AM NEVER OR WOULD I EVER YELL AT ANYONE! THIS IS MY FIRST SUGGESTION AND I WILL EXPLAIN THE REST BELOW! THANKS!
FindaWay
FindaWay
New - Help I am so confused: Are they real seizures? Should I take the ...
Created by FindaWayat11/2/08 - 11:00 am|64 Views|4 Comments
Posted To: New to Epilepsy.com
  Hello, I am new here and I need some help/support. I have had seizures (or) something that appears like them for the past few years. They have gotten worst. And, I don't know what to do. I don't have medical insurance at the moment,...
dainty
dainty
New - Birthmarks & Epilepsy
Created by daintyat11/12/08 - 5:14 am|18 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
Anyone know of any relation between birthmarks and E?  I have 2 kids with genetic E and they both have birth marks. I was asked about them by the Dr but am wondering if there is any correlation. Thanks joan*
emic
emic
New - Trileptal and weight gain
Created by emicat5/10/05 - 7:53 am|1907 Views|22 Comments
Posted To: Medication Issues
I know that Trileptal is not normally related to weight gain, but I swear that it has made me pack on some pounds.  I'm only on 300 mg/day, and I've been on it for only about 3 months.  Before this, I had no problem keeping...
filigree
filigree
New - Trying to gain weight on Topamax!
Created by filigreeat9/11/08 - 8:35 am|38 Views|3 Comments
Posted To: Medication Issues
I am on Topamax (currently 100mg, 2x day) to control my complex partial seizures. I just started it a couple of weeks ago, and it seems to already be doing the trick. It caused me to have more seizure activity at night at first, as I've been tapering up,...
angele...
angele...
New - epilepsy questions
Created by angele...at12/2/08 - 11:34 am|18 Views|1 Comment
Posted To: Parent Group
dfazg
dfazg
New - Anyone from Des Moines, Iowa with a child who has epilepsy?
Created by dfazgat12/2/08 - 11:28 am|9 Views|1 Comment
Posted To: Families & Friends
My 5 year old is having a check with Dr. Narawong for the first time this month and I would like some Dr. reviews if anyone has taken their child to her.  My insurance only covers 2 pediatric neurologists and I picked her since she was at Blank.  My other...
melladee
melladee
New - can't drive anylonger, I've been thinking about starting a busine...
Created by melladeeat11/25/08 - 4:26 pm|20 Views|2 Comments
Posted To: Living With Epilepsy - Adult Issues
I don't know much about e-commerece or websites, I do know I must do something fast. Does anyone have any experience with online businesses? Could you help me out please? thanks , melladee
shu
shu
New - Controlling absence seizures
Created by shuat3/8/08 - 8:07 am|267 Views|26 Comments
Posted To: Parent Group
Does anyone else have a child with just absence seizures and no other neurological problems. I am trying to find someone who can support/relate to what we are going thru.  I know compared to others, having just absence seizures, seems less problematic, but...
ETP
ETP
New - Topics for a New Consumer Journal
Created by ETPat11/27/08 - 9:56 am|80 Views|7 Comments
Posted To: Consumer Journal
If you haven’t read about it already, epilepsy.com is preparing to launch a new journal about epilepsy, written and reviewed by you, the people who live with epilepsy everyday. We are accepting submissions for articles from people with epilepsy, their...